When I started to define BOOP, she told me there was no need -- one of her congregants had it.
So I passed along my information and encouraged the congregant to be in touch.
That same morning, I heard from a Friend-of-a-Friend. She too, had had BOOP, in the past and gave me some vital information about what to expect over the next few months.
In July, I heard about another BOOPer, the husband of my dental hygienist's patient.
My pulmonologist says he is treating 3 or 4 patients with it.
I don't know what it is, perhaps our urban environment, but I do seem to be tripping over BOOPers. I'm getting the feeling BOOP is not as "rare" as we think.
I'm collecting a lot of information about how this disease presents and how it is treated.
If you have stories to tell....I'm really interested to hear!
A note about fate.
It turns out the Rabbi had missed the previous train, and thus bumped into MyMan and me. And so she noted, it was, as we say in Hebrew, b'shaert, meant to be, that she miss that train and meet me. She would provide the blog address and contact information to her congregant.
It is not a "rare" condition here in Sao Paulo (Brazil) at all...
ReplyDeleteMaybe it does have a connection with huge, polluted urban centers.
Curious, isn't it?
Best always, Wagner
Thank you Wagner. that's very interesting. Please forward any information, even in Portuguese. Thanks again!
ReplyDeleteMarjorie, I am sending a link from the prestigious "Hospital Samaritano" in Sao Paulo. Have a look at it:
ReplyDeletehttp://portal.samaritano.com.br/pt/interna.asp?page=1&idpagina=245
To read more articles in portuguese or see related pictures, google as "boop doenca" . Don't forget to select portuguese in advanced search or preferences. Let me know if you got it!
Wagner
Wagner,
ReplyDeleteThank you so much for this link. I Googled boop in Portuguese and more links came up than I ever saw before! Needs more research. Thank you again!
I told you. You are not an exception at all. I've been asking around. 1 out of 3 either knows the condition or knows someone who went through it and is totally healthy right now.
ReplyDeleteBest always, Wagner
Hi Marj,
ReplyDeleteI am the Booper that the rabbi was speaking of. It certainly was b'shaert that you met each other as you did. Unfortunately, at the time the rabbi called me I was probably in one of the worst situations I've been in in my life. I had started on 40 mg. Prednisone that Tuesday and I was awakened during the night feeling, for the first time since my lung biopsy, the site that has permanent damage from uip - (usual interstitial pneumonitis) which is not curable. My blood pressure was going wild and I took everything I have here until I reached some kind of normalcy. Since then I have found that I have to use oxygen 24/7 and I have become extremely weak and go through stages of confusion. I will be seeing my pulmonary specialist tomorrow with a lot of questions.
I remember the rabbi giving me your contact information, and I have looked high and low for it, but have not found it. I would appreciate it if you would send it to me. SMash37@aol.com.
G-d bless you for your determination and willingness to share your experiences with others. The rabbi is my special angel and I am so happy that you were able to meet again.
Sandy Mash